Makaton is a language program that uses symbols, signs and speech to enable people to communicate. It supports the development of essential communication skills such as attention and listening, comprehension, memory, recall and organisation of language and expression. As I started to use Makaton more with Aara it got me thinking maybe I should enhance … Continue reading Makaton
Author: rtswarrior
Music Therapy
Early intervention is key to helping the development of any child with mobility and communication delays. Aara from 6 months was working with a Physio, Speech and Language therapist and an Occupational Therapist. Music Therapy was also highly recommended when we spoke to other parents although at the time I had not really heard of … Continue reading Music Therapy
Physiotherapy, Occupational Therapy and Soft Play
As children with RTS experience some form of delayed development in their mobility, here is Aara’s development journey from 5 months – 3 years of age. At 5 months Aara was finally seen by a paediatrician. We had been waiting for 2 months for the appointment, as we were extremely concerned with her reflux. The consultant … Continue reading Physiotherapy, Occupational Therapy and Soft Play
Exploring the World
During the first couple of years of Aara's life we managed to go on a number of trips abroad, making use of the free travel for under 2’s. Although at this point we did not have the diagnosis that Aara had RTS, just like any parents you do worry that your child will be screaming … Continue reading Exploring the World
What is RTS
Rubenstein Taybi Syndrome (RTS) is the label doctors have given to our child; a disorder neither my wife nor I have ever come across and why would we? No-one we know has had this genetic abnormality and blood tests showed neither of us are carriers. After being given this diagnosis my sole purpose in life … Continue reading What is RTS
The Diagnosis
As first time parents Abbas and I had no clue what we were doing, the usual thoughts kept floating in and out of our minds, has Aara eaten enough? why is she crying? why is she sleeping so much? But in my heart I knew there was something different with my little girl..... Aara at … Continue reading The Diagnosis
Life was about to change
I still remember the day I found out my wife was pregnant, one of the happiest days of my life. If I am being totally honest neither of us thought Zohra was actually pregnant, I mean we had only recently started trying and didn't think it would be this quick. I had noticed an increase … Continue reading Life was about to change
