Our Story

Life was about to change

I still remember the day I found out my wife was pregnant, one of the happiest days of my life. If I am being totally honest neither of us thought Zohra was actually pregnant, I mean we had only recently started trying and didn’t think it would be this quick. I had noticed an increase … Continue reading Life was about to change

The Diagnosis

As first time parents Abbas and I had no clue what we were doing, the usual thoughts kept floating in and out of our minds, has Aara eaten enough? why is she crying? why is she sleeping so much? But in my heart I knew there was something different with my little girl….. Aara at … Continue reading The Diagnosis

What is RTS

Rubenstein Taybi Syndrome (RTS) is the label doctors have given to our child; a disorder neither my wife nor I have ever come across and why would we? No-one we know has had this genetic abnormality and blood tests showed neither of us are carriers.  After being given this diagnosis my sole purpose in life … Continue reading What is RTS

About Me

Hi, I’m Aara. My parents refer to me as their RTS warrior. This page details their story from pregnancy to finding my RTS diagnosis.

Subscribe to My Blog

Get new content delivered directly to your inbox.