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As children with RTS experience some form of delayed development in their mobility, here is Aara’s development journey from 5 months – 3 years of age. At 5 months Aara was finally seen by a paediatrician....

During the first couple of years of Aara’s life we managed to go on a number of trips abroad, making use of the free travel for under 2’s.  Although at this point we did not have the diagnosis that...

Rubenstein Taybi Syndrome (RTS) is the label doctors have given to our child; a disorder neither my wife nor I have ever come across and why would we? No-one we know has had this genetic abnormality and...

As first time parents Abbas and I had no clue what we were doing, the usual thoughts kept floating in and out of our minds, has Aara eaten enough? why is she crying? why is she sleeping so much? But in...